Introduction
Who are you? I’m a rare chronic illness patient living in a very rural area. In 2011 I developed severe neuropathy. I can’t feel my skin. I can’t control my temperature, blood pressure, heart rate or glucose. I have a pacemaker, a port, a pump, a CGM and a heart monitor. I’m an incurable case. I won’t improve. I’m also a pretty good runner. It helps me control my physical symptoms and cope emotionally. What’s your diagnosis? Autonomic neuropathy What’s this blog about? This blog is a brutally honest account of what it’s like to live in the harsh reality of having a rare illness that few doctors have heard of or can treat and none can cure. It’s a blog about what it’s like to cope with all that chronic illness takes from you.